蜜桃交友

By Francesca Merlo

Professor Marcello Orzalesi, a retired Professor of paediatrics and neonatology, is now the scientific coordinator of the Maruzza Foundation, a non-profit organisation whose aim is to improve the quality of life of terminally ill children and their families.

At least that

The aim of the congress is to gather experts, authorities and people working in paediatric palliative care and in the treatment of children because there is a gradually increasing number of children who cannot be cured, so that 鈥渁t least we can improve the quality of their lives鈥�. The congress has been meeting every two years since 2012.

The number of these children is gradually increasing, says professor Orzalesi, and often their needs are neither really met nor even considered. The reason for this is that more babies, who in the past may not have survived birth, are now doing so thanks to advances in technology. However, though they are now surviving birth, they are living difficult, and often short lives. 

Neither euthanasia nor abandonment

The public, who Professor Orzalesi believes often have misconceptions of what paediatric palliative care is, should be sensitized towards it. Often they mistake it for euthanasia, he says, or with abandonment, 鈥渨hich is not true鈥�.

What is palliative care?

Paediatric palliative care is ensuring that 鈥渁s long as they [the children] survive, we try to decrease as much as possible their suffering and increase as much as possible the quality of their lives and the lives of their families".

Not only doctors

This is done by 鈥渢aking care of their symptoms - especially pain - but also spiritual, psychological, emotional and social needs" by bringing in a huge team of specialists which include 鈥渘ot only doctors and nurses but also psychologists, social workers, and the family paediatrician鈥� all working together.

Professor Orzalesi explained the theme of this year鈥檚 as 鈥渓ooking into the future and looking for innovative and perhaps nontraditional ways to achieve the purpose we discussed in the conference鈥� and to see if anything else can be done. The conference aims to see how to further improve what the Maruzza Foundation is trying to do.

Media manipulation

One of the important topics touched on by Professor Orzalesi is the news that is so often manipulated by the media. He says that not only is there very often not enough information, it is too often completely wrong. 鈥淲e live in the world of fake news鈥�, says Professor Marcello Orzalesi. 鈥淰ery often, the correct information does not go through,鈥� 鈥� a theme that will be thoroughly discussed during this 4th Global Conference.